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Hemophilia Books from myfoodcount.com
Haemophilia or hemophilia is the name of any of several hereditary genetic illnesses that impair the body's ability to control bleeding. Genetic deficiencies (or, very rarely, an autoimmune disorder) cause lowered plasma clotting factor activity so as to compromise blood-clotting; when a blood vessel is injured, a scab will not form and the vessel can continue to bleed excessively for a very long period of time. The bleeding can be external, if the skin is broken by a scrape, cut or abrasion, or it can be internal, into muscles, joints or hollow organs. It might therefore present visibly as skin bruises, or subtly as melena, hematuria, or bleeding in the brain.
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The Official Patient's Sourcebook On Hemophilia
by Icon Health Publications
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to hemophilia (also AHF Deficiency; AHG Deficiency; antihemophilic factor deficiency; antihemophilic globulin deficiency; Christmas disease; classic hemophilia), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on hemophilia. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.
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Textbook Of Hemophilia
by Christine A. Lee (Editor), Erik E. Berntorp (Editor), W. Keith, M.D. Hoots (Editor)
The only up-to-date definitive reference source on hemophilia"It has been more than 20 years since the publication of a textbook that focused on hemophilia and, consequently, this book seeks to and successfully fills an obvious void."New England Journal of Medicine
This book is an invaluable resource that provides an overview of all aspects of the care of patients with haemophilia.Covering how to assess both bleeding children and adults, Haemophilia A and B, molecular basis of the disease, the role of factors in coagulation, epidemiology, pharmacokinetics, and treatment of inhibitors. There will also be a section on musculoskeletal aspects of haemophilia as well as newer developments such as gene therapy and rare bleeding disorders.Textbook of Hemophilia is ideal for:
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Trainees and residents in hematology
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Hematologists in practice
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Specialists working in thrombosis and hemostasis as well as transfusion medicine
Why Buy This Book? The only up-to-date definitive reference source on hemophilia"The excellent reviews in this book will make it useful to a wide audience."New England Journal of Medicine
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Essential for all those managing hemophilia patients
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Detailed guidance on assessment, diagnosis, management and treatment
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Advice for everyday clinical questions
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Edited by three of the world's leading experts on hemophilia
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The only up-to-date definitive reference source on hemophilia
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Blood Saga : Hemophilia, AIDS, and the Survival of a Community, Updated Edition With a New Preface
by Susan Resnik
For thousands of years boys known as "bleeders" faced an early, painful death from hemophilia. Dubbed "the Royal Disease" because of its identification with Queen Victoria, the world's most renowned carrier, hemophilia is a genetic disease whose sufferers had little recourse until the mid-twentieth century. In the first book to chronicle the emergence and transformation of the hemophilia community, Susan Resnik sets her story within our national political landscape--where the disease is also a social, psychological, and economic experience.
Blood Saga includes many players and domains: men with hemophilia and their families, medical personnel, science researchers, and the author herself, who was Director of Education of the National Hemophilia Foundation in the early 1980s. At that time the "miracle treatment" of freeze-dried pooled plasma blood products enabled men with hemophilia to lead full, normal lives. Then the AIDS virus infiltrated the treatment system and over fifty percent of the hemophilia community became HIV-positive. But rather than collapsing, this community refocused its priorities, extended its reach, and helped shape blood safety policies to prevent further tragedy.
The hemophilia community includes people from every socioeconomic and ethnic group, and Resnik's narrative and use of oral histories never lose touch with those affected by the disease. Her extensive informant interviewing allows much of this social history to be told by participants on all levels: parents, wives, nurses, doctors, government agency directors, health care providers, and many others.
Gene insertion therapy now holds the promise of a cure for hemophilia in the near future. Scientific breakthroughs inevitably become intertwined with the industry and academic medical centers that govern the national health care system. And in that system, says Resnik, costs and safety are sometimes contending issues. She makes clear that the lessons learned in Blood Saga apply to all of us.
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Genetic Disorders Sourcebook: Basic Information About Heritable Diseases and Disorders Such As Down Synd Rome, Pku, Hemophilia, Von Willebrand Disease, ... Tay-Sachs d (Health Reference Series)
by Karen Bellenir (Editor)
More than 6,000 human diseases, including Down Syndrome, Hemophilia, and Sickle Cell Disease, have been linked to genetic causes. While some diseases can be managed to allow sufferers to enjoy a near-normal lifestyle, others are invariably fatal. Genetic Disorders Sourcebook is a comprehensive collection of authoritative information presented in a nontechnical, humanitarian style for patients, their families, and caregivers.
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Living with Haemophilia
by Peter Jones
Presents causes and treatments of bleeding disorders and how to live within the limits they impose regarding activities, education, employment, sex, and family planning.
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New Aspects of Hemophilia Treatment: 3rd Symposium, September 21-23, 1995 Copenhagen, Denmark (Haemostasis, Vol 26, Suppl 1)
by Harold R. Roberts (Editor)
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The 2002 Official Patient's Sourcebook on Hemophilia
by James N. Parker (Editor), Philip M. Parker (Editor)
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to hemophilia (also AHF Deficiency; AHG Deficiency; antihemophilic factor deficiency; antihemophilic globulin deficiency; Christmas disease; classic hemophilia), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on hemophilia.
Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.
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The Haemophilic Joints: New Perspectives
by E. C. Rodriguez-Merchan (Editor)
The book draws together, in a single volume, the more recent perspective of all the orthopaedic methods that can be applied in the diagnosis and treatment of the haemophillic joints from numerous specialists worldwide.
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Physiotherapy Management of Haemophilia
by Brenda Buzzard (Editor), Karen Beeton (Editor)
The management of haemophilia has changed enormously over the last 30 years. Early and adequate treatment of bleeds and prophylactic programmes have ensured that recovery is more complete and the devastating effects of arthropathy are minimized. However, despite these developments, many patients still present with bleeds, chronic synovitis and arthropathy due to inadequately managed bleeds in the past and, therefore, physiotherapy remains an important aspect of treatment.
Physiotherapy Management of Haemophilia provides a comprehensive overview of the physiotherapy treatment concepts and management strategies currently available that can be incorporated into the management programmes for patients with haemophilia. It is written by physiotherapists with a broad range of experience of haemophilia, based on their clinical experience and supported by evidence from the relevant literature.This book is essential reading for the physiotherapist responsible for the treatment of patients with haemophilia. It will, however, also be a valuable source of reference for doctors, nurses, orthopaedic surgeons and counsellors.
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